Seize The Day

Today has been filed with ups and downs. I must say the ups are worth the downs.


I'm still drowsy and dopey from the phenobarbital but the side effects are wearing down. I only took  one nap today and stayed up later than I expected although I'm very tired.

Eurythmics-"Here Comes The Rain Again"

My wife says I've been quiet lately and I have been. For the first time in my life I don't feel like like a man who has Huntington's Disease, but instead feel like "that Huntington's Disease man.". Its one of those little word games we don't  really think about until it effects us. 

I truly feel like my body is betraying me. As I told my psychiatrist I don't feel like I own it anymore, but have it on lease. 

Talking Heads-"Wild Wild Life"

After spending some time on Twitter and enjoying the new box I purchased for the telly that lets us view streaming content such as Hulu Plus and Netflix, I put on Frankie Goes To Hollywood and jumped in the shower to get rid of the last of hospital smell. Somewhere between Welcome to The Pleasuredome

Frankie Goes To Hollywood-"Welcome to The Pleasuredome"

And Ferry Cross The Mersey

Frankie Goes To Hollywood-"Ferry Cross The Mesey"

I had a seizure. Right there in the shower. I must have fallen against one of the walls for Jane heard it and came in from the kitchen where she was cooking dinner.

Julian Lennon-"Too Late For Goodbyes"

I was okay, not even a bump on the head but all I remember of the hours beforehand was the music. It reminded me of the fact that music appreciation is the one thing a person with Huntington's Disease does not lose. 

The Human League-"Blind Youth"

I've had this song stuck in my head since yesterday evening. This reply to Johnny Rotten's remark that The League is just "Trendy Hippies" has been replaying in my mind to the point I found myself walking to the rhythm of it. Its a good think I didn't have the Peel Sessions version in my head or I'd be running everywhere. 

Another side effect of this medication is double vision, for example I see four hands in the screen capture above.  I am having to rely on my touch typing as I can't view to keyboard or the lines on the screen. This time of night everything is double. I even see two Jane's next to me. 

I'm trying to eat but its hard to aim the sandwich in my mouth. I wonder how blind people do it?

U2-"Stay Away (Faraway So Close)"

This has been my theme song lately. The closer Jane gets to me the more I find myself pushing her away. It hurts so badly. I know that part of it is I'm uncomfortable with her taking the care-taking role. Its hard  seeing her in two totally different positions. For example, when I had the seizure in the shower I w as half bathed. Now somehow I had to get the shampoo out of my hair and soap off the left side of my body. After letting her rinse me off (I was in no condition to do this) how can I then go and see her as my lover? Its a very hard transition, yet one at least now I'm able to make.

U2-"A Sort of Homecoming"

I know the time will come when something will cross that line and I will no longer be able to make the transition. That makes me sad. To do that will be to deny part of her personality. 

U2-"Some Days Are Better Than Others"

So despite all of this today I actually spent the several hours celebrating. Jane was notified today by the clinic that she her pregnancy test came back positive! Of course, we had to make all the obligatory telephone calls to relatives before we settled down to celebrate. 

Kool and The Gang-"Celebration"

Then it was Viagra time.

Robert Plant-"In The Mood"

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Bad lip syncing, George Michael and more.

Mood 5.5

Anxiety 2.0

I haven't been sleeping well lately. I spent over 24 hours in a medicated sleep. I wake up every four hours with anxiety and pain, take medication and fall back asleep half an hour later. Evidently my sleep isn't very productive as J says I'm tossing, turning and jerking. All I know is that after three cups of coffee I'm still yawning.

First I want to play Round and Round by Spandau Ballet.

The lead singer of Spandau Ballet, Tony Hadley, is a patron of the HDA.

This next song has been playing around in my head for several days. Perhaps its because its on one of my tabs on Chrome and my computer has been crashing. Every time I start it up, this song comes on. Then again, I've also been watching an interview and performances by Human League on the old Australian show Countdown and this is one of the songs they lip sync.

The Human League - Love Action

The reason I've loved this song for so many years is that its a man talking about feelings and failures in love. At one point he even talks about curling up and crying. 

These are feelings we do go through but here in America you never dare admit failure. Its one thing I really don't like about the culture here. They invented the entire "Keep up with the Joneses" phenomenon. 

I found this gem in a great playlist of the entire Human League portions of this show that showed up in my email. It starts with this performance of Love Action, a couple short interview sections and then Open Your Heart and ends with a hilarious version of Don't You Want Me in which Philip turns away from the mic halfway though the chorus to laugh. Strangely although he's in the same clothes, the other members aren't which leads me to believe it was recorded/aired on a different day.

On second thought, I'm going to put this version of DYWM up here. Its music comic gold. 

To quote what I wrote on Facebook:

Sorry but I can't help cracking up when Philip and Susan turn around to laugh. At 2:20 he doesn't even give a crap and turns away halfway through the chorus. When the camera cuts away the keyboardist is smirking too. Got to love live television.

Early Human League song Black Hit Of Space (1980)

You  can see the soon-to-be members of Heaven 17 here in the background, The reel-to-reel at the 

bottom is their electronic substitute for drums. 

The Paul Simon Concert went really well. I am so glad I had the chance to go. He was on top of his game and in the intimate venue like the bowl it came off really well. 

The Sound of Silence at Ground Zero, NYC

Speaking of Paul Simon, He was on the Johnny Walker Show today on Radio2. It was a replay of a show from May. It was perfect timing for me :) You can hear the entire show "You Can Call Me Paul"  for 7 days online.

I called my shrink today. I am going in Wednesday but I'm just not feeling good. My OCD is coming out like crazy. I can't leave the house for a cigarette without freaking out thinking the coffee pot is still plugged in. Get out of my car and "Oh $hit, did I lock the door?" You get the picture. Its not too pleasant.

I also mentioned that on top of the OCD my anxiety is now constantly through the roof. It takes so much Xanax to get rid of the anxiety I end up asleep. Its easier to sleep then let my thoughts run wild. Right now there is no in-between. Eventually  anxiety took over so strongly it helped set off a headache. What started the headache was I was reading on the laptop by my side of the bed and fell asleep. Sure enough, like what has happened before, my neck jerked, waking me straight up.

Choosing this song simply because I love it.

I really feel John's Words.

Right now this is how I'm living and enjoying every minute of it.

Yeap, I think its time to go back on the Haldol. I was seriously hoping to avoid having to start it again. There is no getting around it though. I'm not sleeping until I'm beyond exhausted, small things are giving me a rise that is fully out of proportion, and I'm OCDing like crazy. The SSRI's for OCD have never worked on my depression so to go on one of those would be trading off an antidepressant for an OCD medication, and that is not a trade-off I can afford. To make a long story short, he agreed with me and actually had the guts to tell me he was wondering how long it would be until I would 'fess up to him that I needed it. Live and learn I say.

Julian Lennon-Too Late for Goodbyes

One thing I've noticed lately is that the more text I have in my blogs, the higher my depression level. It may not be higher on the scale, but the longer the depression the more introspective I become. When that happens I write more here on this blog.

An old Saturday Night Live Skit. This
is a compilation of four Deep Thoughts by Jack Handy

George Michael 

 just tweeted this song. I love ballads anyway

but this one is a beaut.

And with that I'm going to finish this pizza and then sleep.

However, first I want to thank J for putting up with the mood swings and all the rest of these Huntington's Disease mental games I've been going through. J, I love you. As in really, really love you. As in I wouldn't b*tch if I ended spending the rest of my life with you. This one's for you.

Thank you to all the musicians featured here tonight who lifted my mood up.

Mood 8.0
Anxiety 1.5

G'Nite and hope you are sleeping well.

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