Whole Lot of Shakin'

One of the things I've changed the last few weeks is that I've begun using an electric shaver. Lately I have been getting more cuts from my razor than I'd like to admit so after my honeymoon I bought myself a Norelco 1250  SensoTouch. I wanted a nice one because I hate electric shavers. My facial hair is dark and straight so I need to shave with the electric a couple times a day.

My wife took her "Trigger shot"  last night. If all continues well she'll have her eggs removed Saturday. If any of the fertilized embryos are Down Syndrome and Huntington's Disease free two will be transferred into Jane early next week.

John Lennon-"Here We Go Again"

I had my blood drawn for my CAG Repeats again. It turns out that when a number shows up as high as mine it should be checked with a Southern Blot. My CAG can be much lower with some other proteins before an additional set of repeats (I think I got that right). Only the closet set will affect my HD. This would explain my high CAG number in the original test. It makes me anxious to think about the waiting game but I'm happy to find out my true count.

Swing Out Sister-"Waiting Game"

I never do good with waiting and this isn't anything new. Last time I wasn't so worried about the test as being anxious to travel out of town. I hadn't known I could do it through my private doctor. This time my psychiatrist ordered it, so I'll be getting the information from someone I really trust with my mental health. He told me this morning that he wouldn't have felt comfortable ordering the first test as he's not as knowledgeable about Huntington's Disease but he has no problem with a repeat test as I've educated him on it through my own struggles with the last test result. 

Alphaville-"Forever Young (extended)"

and another song, same title

Rod Stewart-"Forever Young"

The following is an advert by some supporters of Ron Paul. Paul is a candidate for President and is a member of the Republican Party. Please note he did not approve this advert. It was made by supporters who have not received his endorsement.

It is one of the most racist ads I've ever seen, and is very funny in a sick way. It reminds me of Christine O'Donnel 's ad that featured her saying "I am not a witch...I'm you."   Uhh, no you're not. I don't feel a need to go on telly denying I'm a pagan. 

"Chinese Jon" Huntsman ad

Back to my blood draw-I'm so upset over it now I'm shaking. My fingers are bouncing off my keys and hitting the wrong ones. I hate when that happens. Sometimes when I get extremely upset my muscles tighten up. That increases my shaking. I wish so strongly I had these results now. I'm really scared about this but I can't put my finger on exactly what I'm scared of. I do know I'm concerned because I hear the little OCD voice capitalizing on my thoughts.

Jerry Lee Lewis-"Whole Lot of Shakin' Going On"

It doesn't help that I'm coming down with a cold. My throat is sore as hell, and my nose is starting to run. Its making me moody as hell. Being sick usually brings out the worst in my HD. I wonder if that's why I'm so jumpy and and upset?  I'm going to sign off and go read if I can while I eat some chicken soup. Then its back to Judge Judy.

Catch Paul Ware on Facebook or Twitter. I can also be reached via email (delete no spam) but much prefer the Facebook message option. The comments section is fine too.

Catching Up

I had a nice, quiet but enjoyable New Year's last night. I had been invited to a friends birthday party but decided to stay at home with Jane. I'm glad, it was a nice enjoyable evening.


Today's music is curtosy of 80sMusicGirl. She played these 80s songs last night.

Swing Out Sister-"Breakout"

I'm starting to settle down to the married life. I must say I enjoy it. Although I didn't think it would change me, I was wrong. Suddenly I feel safer. Our relationship is so much more stable. Its almost as if we are able to read each others mind more so than before if that makes sense.

ABC-"Be Near Me"

This morning I woke up too early so I only got four hours sleep. I don't feel tired though so I'm making breakfast while I type. I'm back on a diet to gain weight. I'm not as thin as I was a year ago but I need to gain extra weight so when I get chorea later I'll have the calories to burn. 

Go West-"King of Wishful Thinking"

One thing I've been flirtiing with is my ability to become a citizen in three years. If my Huntington's Disease doesn't make it so I don't have the brain power to take the citizenship test, I likely will prepare myself so I can vote at that time.

People ask me why I want to become a citizen as I will have to give up my right to vote in England. I'm simply here for so long that I see some policies I don't like. It would be nice to have a very small influence on them. 

Prince-"Let's Go Crazy"

When this song came out my little sister teased me that this is my theme song. This one is for her. She's thinking about having the test for Huntington's Disease. Since our mother had it, all her children have a one in two chance to carry the gene. If she tests positive for having the gene she will eventually get HD. I've told her I'll fly out and support her when she goes in to hear the result. I remember when I went in to have my results announced I was thankful Jane was there, even if I already knew I had HD. I had the test so I'd know my CAG repeat count. As I've mentioned it is the area of JHD. I was thankful that she was standing there while I was on the phone. I don't know how I'd have managed that otherwise.

The Go-Gos-"Vacation"

I'm reading a lot more since I got my Kindle. Something about it makes it easier for me to comprehend what I'm reading. I'm not sure if its the font or spacing or something I'm completely unaware of, but its nice to have the old habit back. The book I'm currently reading is Blown For Good-Behind The Iron Curtain of Scientology by Marc Headley. I've wanted to read this since my reading first went down the tube. At 50% completed I must say it was worth the wait. Headly takes you inside the Int Base, the intitution where not only are the "Church's" movies are made but also the home of leader David Miscavige.I highly recommend this book.

Orchestral Manoeuvres In The Dark - "If You Leave"

My wife and I have one week to go until she will be ready for her doctor to remove her eggs for fertilization. We are like little children waiting for Christmas to open our gifts.The IVF drugs are making her moody, but not half as bad as expected. 

Simple Minds-Don't You Forget About Me"

Well, I'm caught up. Thank you for reading. I hope the rest of your day treats you well.

Catch Paul Ware on Facebook or Twitter. I can also be reached via email (delete no spam) but much prefer the Facebook message option. The comments section is fine too.