Saturday, 4 February 2012

Will I?

Before I say anything else, I want to thank everyone for their kind words the last couple of weeks. They mean more than you know.

I've been so quiet lately simply because I don't want to talk. Its a symptom of my depression from Huntington's Disease, but more than that I've just been contemplative.  One thing I have been doing more of is reading. The Kindle has really reopened the world of books to me.

Howard Jones-"Things Can Only Get Better"

On top of the lack of initiative is a splitting headache and a malaise I haven't been able to track down and life hasn't been the cheeriest this week.

The good news is my cat is doing better. Once I brought home the money in case I would have to take her to the vet and she started eating, grooming herself, using her box, and even playing with her sister again. If I didn't know better I'd think just the fact she knows she has an out has brought her comfort. It wouldn't surprise me. She's a very smart cookie.

Human League-"Blind Youth"

Lately I've had early Human League running through my head. "Blind Youth" and "Empire State Human" aren't the most melodic songs to be stuck on repeat but this last week I haven't been able to shake them. 

The Human League-"Empire State Human"

Adding Heaven 17's Temptation to my mental trio and you could say my head's been in a Martyn Ware state of mind.

Heaven 17-"Temptation (Original Demo)"

Between the Namenda and my Kindle I've found myself spending most of my days reading again. Its driving Jane up the wall because I'm so quiet again she's having to adjust. 

Bronski Beat and Marc Almond-"I Feel Love"

When I'm not reading we've been taking advantage of the new couch and having the telly hooked up to Netflix and DVD players. We've been watching a movie together most evenings this past week.

Fellow Sheffield United fan P. d. Heaton 
The Housemartins-"Flag Day"

The Housemartins-"Get Up Off Our Knees"

One thing I did manage to accomplish this week was setting up a blog for my wife. She had decided she didn't want full read/write privileges here as she doesn't read my blog on a regular basis (she feels more comfortable giving me space to write my thoughts without her having to intrude by reading them.) Then I moved her posts from here onto her blog, so all of her writing will be in one place.

The odd thing is this week I just haven't been on the computer that much. Facebook is checked once a day, I'll send a couple tweets on my phone, and that's about it. 

Tracy Chapman-"Fast Car"

In all honesty, I've been future tripping a lot. The problem with future tripping is that when you have Huntington's there isn't much in the future. Things my mind have been focusing on include how I will die, when I will die, and my relationship with others at the time of my death.

Simple Minds-"Alive and Kicking"

I'm not doing this in a depressed sort of way, but more of a factual sort of way. My therapist said its because I'm in the final stage of facing my HD: acceptance. For obvious reasons this has made me introspective.

Depeche Mode-"Enjoy The Silence"

This isn't something I can talk about. My wife wouldn't understand because she's not in my body, I don't feel comfortable talking about it with friends, and to be honest there isn't much to talk about. Where I am is more of a state of being than a  set of thoughts.

The Cars-"Drive"

My mum has also been on my mind. I wonder about the afterlife, if there is one, and if I will ever see her again. Sometimes lately I just miss her. I want to hear her laugh, see her smile, and be there for her when she cries. This is my way of saying "Dammit, sometimes I just miss her." 

Its times like this that I loathe HD.

Mike and The Mechanics-"The Living Years"

At the same time I wonder about my wife and our child: how much will I be able to see of their lives, what and how will they see mine, what will we have the chance to experience together?

Rent Motion Picture Cast-"Will I"

These thoughts are actually liberating. Its as if they were being held back by a mental.wall, and now that its  down everything is rushing out like water behind a dam. When they stop running it actually feels cleansing. 

Because no matter how hard we look life is just a bunch of
Small Circles
The Rainmakers-"Small Circles"

G'Nite now.

Catch Paul Ware on Facebook or Twitter. I can also be reached via email (delete no spam) but much prefer the Facebook message option. The comments section is fine too.

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